Kabuki Syndrome is a rare genetic disorder that has a profound impact on individuals and their families. The Kabuki Syndrome Foundation Family and Friends collective fund raises money for the US based organisation Kabuki Syndrome Foundation towards its mission is to advocate for individuals with Kabuki syndrome by finding treatments that will improve their lives.

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Awards & Recognition

Powerwomen Awards International 2025
Finance Team of the Year 2024
Recommended by peers 2023/2024
Philanthropy Offering/Initiative of the Year 2024
Top 10 Philanthropy Advisors 2024
Outstanding CEO, Pursuing Wealth for Good (Europe) 2023 Winner
Philanthropy Team of the Year 2023, Finalist
The SPEAR’S 500 2023
Philanthropy Advisor of the Year
The SPEAR’S 500 2022
Philanthropy Advisor of the Year
Spears Philanthropy Advisers Index
Philanthropy Advisor of the Year 2021
Top Recommended Philanthropic Advisors
Best Charities to Work For
Trustee Board of the Year
The SPEAR’S 500 2019
Outstanding Contribution to Charity
Best Philanthropy Engagement
Best Philanthropy Engagement
Philanthropy Adviser of the Year Finalist